Archive | October, 2009

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The quick update on me is the antibiotics are kicking in but still feeling jaded. Plan to get a good vlog (video blog) in soon, I promise! Also the car is being collected Monday from one garage to another. Been away around 2 weeks on this occasion and its still not fixed Anyway this blog […]

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Guest blog – M.E. and me by Diane Sibley

Hi, I’m Diane, Martyn’s Aunty, but let’s not linger on that point too long, as I’m only 8 years older than Martyn, so I’ve never really felt like an Aunt!! It was a pretty tough thing for a 10 year old to understand that my amazing little nephew was never going to walk – but […]

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Poorly

Its almost 1 week since the last blog where I mentioned the cold brewing. I’ve not been up to much. The only thing really was my sleep study on Monday night in Papworth hospital. An annual study to look at my breathing and blood gas levels. if problems are detected they can be treated quicker […]

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Checking-in

I have had a quite quiet week since the last blog. Monday I stayed in. Tuesday I went for a drink with some work colleagues to the nearby regular around the corner. Yesterday and today I have not felt so good with a cold brewing and really needing a loooong sleep. Its often the way […]

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BBC article on Direct Payments

This article was on the bbc website today. My response to Donal Macntyre is below http://news.bbc.co.uk/1/hi/health/8308782.stm. Hi Donal I did not manage to hear the podcast yesterday but read the article online by a beeb reporterI work as a fundraiser for Scope but am not in policy or campaigns. However I am a sociable 26 […]

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Transport

Guess what??!! The car broke down again last night. The same problem as last time, no battery and just wouldn’t start. I think quite rightly I have ranted on this recurring subject. However I promised myself this website would not let me get too down or angry but be explanatory yet positive of the trials […]

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Thursday feeling

Thursdays a weird day! I’m always on my last wheels (or last legs) in energy levels, peaking on the stress front, but yet being in touching distance of the weekend brings me back to a happier state. So the car was delivered to work today apparently the dvd player was draining the battery, fingers crossed […]

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Wembley!!!

Well tonight despite car troubles I made it to the England game against Belarus. Dave drove the old van (that I am trying to sell, yet its more reliable) with mum and claire who went for dinner together. i cant drive the old green mercedes as the clamp on my wheelchair only fits the new […]

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When I moved to London

When I took the big decision to move from St.Ives (Cambridgeshire, not Cornwall) to London, it was for the same reasons as every other 24 year old. It offered career progression, investment in share of a London property, which means anywhere in the world is affordable now, and a much more lively social life. Ok, […]

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