I hope this update finds you well. The world has certainly been through a lot in the past few weeks. I’ve been self isolating from the Corona virus for around 3 weeks now. I’ve no idea, like everybody else, when this will end. So after getting my head around how to reduce the chances of… Continue Reading
inclusion
Rare Disease Day 2020
The 29th February was #rarediseaseday. Having Spinal Muscular Atrophy puts me in with the 300 million other people with a rare disease. When speaking about my condition I’ve always pointed to what I can do. Indeed my career is about what most disabled people can do today, and how society can include us even more… Continue Reading
Voice is the Future
The way I describe being disabled is all about societal barriers. Whether from the environment, people’s attitudes, or organisational policies; these daily touchpoints make or break my ability to live have a happy and fulfilled life. The most pivotal barrier comes from peoples attitudes. When everybody understands inclusion, the built environment and organisational policies are… Continue Reading
An Inclusive 2020 Vision
They say a change is as good as a rest. This is absolutely relevant for me right now! Here’s the inside scoop from my head. I’m writing this post with a full heart, tummy and head. My heart is full from the Christmas presents and connections. My tummy is full from all the delicious festive… Continue Reading
Accessible Istria
For the past 3 years Kasia and I have attended Mindvalley University. A personal development conference held in different beautiful tourism hot spots each summer for 1 month. After Barcelona and Tallinn, 2019 was to be in Pula, Croatia. Having never been to Croatia we were excited but also aware of the challenges a new… Continue Reading
Sir Bert Massie – A life without limits
Over the years I’ve totally geeked out on both disability rights and civil rights. There’s nothing better than a leader building a movement, defying the odds, and beating Goliath. A big reason for me wanting to learn about this subject, is to inform my disability activism today. “We have to understand the past to shape… Continue Reading
EEDR Trip Bloopers and Outtakes
Check out all the mistakes, mishappenings and misgivings on the roadtrip. I encourage you to laugh along 🙂
Final Video of EEDR
Since arriving back from the EEDR I had that much needed shower (after the hotel issues at the end of the trip), had some home cooked food and slept. Following a trip back to London and attending the Stelios Award event, I have been in ‘searching’ mode. I have been mulling over what the trip… Continue Reading