Peaks and Troughs. Ebb and Flow. However much I strive for consistency, it always seems to evade me. Partly because I guess ‘that’s life’. Partly because I seem to like to mix things up! I tend to regularly kick off new challenges. From finishing 2014 tired, living back home, and struggling with a deterioration in… Continue Reading
Daily Perspective
Seeing the Wood for the Trees
Today I went off the beaten track for a walk. A strange sentence to read, and indeed to write, from a wheelchair user. It’s a shame that language is sometimes used to cause offence. The general result is non-disabled people falling over themselves, so to not speak out of turn. While disabled people avoid certain… Continue Reading
5 things about me on World Rare Genes Day
Today is #WorldRareGenesDay and thanks to my esteemed friends Sam Mildon, Tori Elliott and Lauren West (plus a few others); I am to share 5 things you don’t know about me. Running a blog means I’ve spilled the beans already, so here’s some general thoughts for everyone on this important awareness raising day: 1) I… Continue Reading
Everything is Possible
As of 8pm on Saturday night we were finishing our Valentines dinner. I had packed my bags to stay at my mums for the week. Meanwhile Kasia was all set for a week of skiing with her dad in Austria. For no apparent reason I was struck with the idea of joining her. Following a… Continue Reading
Fundamental Foundations
Following a tough end to the year, I saw 2015 in with antibiotics. That said, the medicine did shift that nasty virus I had very effectively. Plus our New Years Eve murder mystery night, where I was the reverend, was great fun. I didn’t commit the crime by the way. It’s been all go since… Continue Reading
The Power of Action
These last couple of months have been really tough. It feels like the carefree happiness of the past years all somehow caught up with me. I mean, I’m always ‘on it’ when it comes to life’s administrative tasks and firefighting problems. However, various problems have landed in my lap in one blast, and it has… Continue Reading
Royal Shakespeare Theatre – Accessibility Review
Last weekend I was invited by the Royal Shakespeare Company to go and see their new production of Love’s Labour’s Won – usually known as Much Ado About Nothing – at the Royal Shakespeare Theatre. Not only was this my first time at the Royal Shakespeare Theatre in Stratford-Upon-Avon, it was also my first Shakespeare… Continue Reading
10 top tips for better health and wellbeing
Ever since I was aware of having my disability called Spinal Muscular Atrophy (known as SMA), I understood that the messages didn’t go from my brain to all of my muscles. Even though I could feel everything, I just couldn’t stimulate the muscles to move much or at all. I also understood that it wasn’t… Continue Reading